Powering Advocacy translates community insight into action by aligning storytelling, research, advocacy, and civic participation. This work strengthens accountability and builds pathways for long-term systems change across healthcare and public institutions.
Advancing Equity Through Policy, Data, and Civic Engagement
NATIONAL EFFORT FOR SYSTEMIC CHANGE
Powering Advocacy builds momentum by turning lived experience into tools, data, advocacy efforts, and civic engagement. This work supports representation, participation, and influence across systems that shape health outcomes.
It does this in three key ways:
How Powering Advocacy Creates Lasting Impact
Powering Advocacy centers patient and community voices through storytelling and shared insight that inform advocacy efforts, research priorities, and policy conversations.
Amplifying Lived Experience and Community Storytelling
This work includes advocacy toolkits, education resources, and data-driven products that help identify barriers to care and systems change opportunities.
Developing Tools and Data for Action
Powering Advocacy supports partnerships, legislative engagement, and civic participation, that elevate community voice and strengthen democratic access.
Advancing Policy, Legislative, and Civic Engagement
Civic engagement and voter registration efforts supported to expand community participation
Advocacy tools and resources developed or refreshed to support education, documentation, and systems engagement.
Program Impact Statistics
Powering Advocacy
Powering Advocacy focuses on building capacity, representation, and systems engagement for communities impacted by autoimmune and chronic illness.
Advocacy and legislative engagements supported at the state and national level, including systems navigation partnerships.
Community stories collected and elevated to inform advocacy, research, and systems decision-making.
Powering Advocacy connects lived experience to policy, research, and civic engagement to advance access, inclusion, and prevention. Contributions support advocacy partnerships, education tools, legislative engagement, and civic participation.
Support the Conversation for Change
DONATIONS ARE 100% SECURE & TAX DEDUCTIBLE
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Powering Advocacy centers lived experience in systems change. The work connects patient stories, community data, and civic participation to policy, research, and advocacy spaces that often exclude people most impacted by autoimmune and chronic illness.
What makes Powering Advocacy different from other advocacy programs?
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The program focuses on health equity advocacy related to access, diagnosis, care coordination, and prevention. This includes legislative engagement, coalition advocacy, systems navigation partnerships, research collaboration, and nonpartisan civic participation.
What kinds of advocacy does Powering Advocacy focus on?
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Yes. Powering Advocacy participates in state and national advocacy efforts, collaborates with advocacy and patient-support organizations, and contributes community insight to policy, research, and systems-level conversations.
Does Powering Advocacy work directly with policymakers and institutions?
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Patient stories are collected and elevated to inform advocacy efforts, research priorities, and systems decision-making. Stories are used to surface gaps in care, highlight access barriers, and ensure lived experience is reflected in solutions.
How are patient stories used in Powering Advocacy?
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Anything else you’d like to learn more about? Get in touch with our team and we’d be happy to answer your questions.
Frequently Asked Questions
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